Health Data for All of Us 2024 SPEAKERS

Alies Maybee collaborates as a patient partner in many aspects of health care, including on research projects and areas of service delivery and policy. Professionally, Alies has been a product manager designing large CRM systems servicing the financial services sector and has helped design an EMR clinical management system. She was a co-chair for her local Ontario Health Team Digital Health Working Group and is on the Toronto Region Digital Health Advisory Committee among others. She was privileged to be on the Expert Advisory Group for the Pan-Canadian Digital Health Strategy initiative. Alies is a co-founder of the Patient Advisors Network (PAN), a national community of patient and family advisors/partners. Alies led the PAN team of patient partners authoring a report: Person Generated Health Data Principles through the Patients’ and Caregivers’ Lens. She leads PAN’s team of advisors interested in technology and innovation projects, many of whom collaborate on digital health evaluation projects for the Centre for Digital Health Evaluation at Women’s College Hospital.

Dr. Alison Paprica (she/her) is Professor (Adjunct) and a Senior Fellow at the University of Toronto’s Institute for Health Policy, Management and Evaluation. Separately, she is Principal of the boutique consultancy Research Project Management, a Senior Fellow at Massey College, and a member of the International Advisory Board for Health Data Research UK. Alison’s previous roles include inaugural Vice President, Health Strategy and Partnerships at the Vector Institute for Artificial Intelligence; serving as a founding member of Health Data Research Network Canada’s Executive Team and chairing its Public Engagement Working Group, Director, Strategic Partnerships at ICES. From 2010-2103, she was Director of the Planning, Research & Analysis Branch at the Ontario Ministry of Health. Prior to working in the public sector, she held scientist and R&D management positions at three different international pharmaceutical companies. Alison holds an Honours Combined BSc in biochemistry and chemistry (McMaster) and a PhD in organic chemistry (Western University). Her main research interests are data governance and research data infrastructure, public involvement in data-intensive health R&D, evidence-informed policy, and the leadership and management of research as a topic in its own right.

Dr. Andrew Pinto is the founder and director of the Upstream Lab, a research team focused on tackling social determinants of health, population health management, and using data science to enable proactive care. He holds the CIHR Applied Public Health Chair in Upstream Prevention. He is a Public Health and Preventive Medicine specialist and family physician at St. Michael’s Hospital in Toronto and an Associate Professor at the University of Toronto. He is the Associate Director for Clinical Research at the University of Toronto Practice-Based Research Network, the lead for clinical research of Ontario’s POPLAR network, and the founder of the Canadian Primary Care Trials Network. He serves on the Institute Advisory Board of CIHR’s Institute for Population and Public Health, is an adjunct scientist at the Institute for Work and Health, and an honorary senior lecturer at St. Andrews University in Scotland.

Dr. Antoine Boivin (he/him) MD, PhD, works at the intersection of medical practice, research, and community engagement. As a physician and co-director of the Canada Research Chair in Partnership with Patients and Communities, he dedicates his career to fostering relationships and connections through research and care. Dr. Boivin’s research and practice is deeply rooted in partnership approaches. His research focuses on the integration of people with lived experience, peers and community partners in healthcare teams. He provides community care with patients who have faced significant life challenges, including Indigenous people experiencing homelessness. To support the translation of learnings into health system change, he co-founded the Centre of Excellence for Partnership with Patients and the Public, and the Quebec SPOR SUPPORT Unit for Learning Health Systems. Dr. Boivin’s collaborative spirit has been acknowledged with the Donald I. Rice Award for vision and leadership by the Canadian College of Family Physicians. Through his multifaceted career, he remains committed to fostering dialogue across diverse perspectives, aiming to create a health ecosystem where we can learn and care with each other.

Bill Pratt (he/him) is the Chair of HDRN Canada’s Public Advisory Council. He has worked and volunteered in the charitable sector with a drive for excellence and inclusion that engages others in the pursuit of being better for the world. Bill’s experience comes from working in the areas of international development, homelessness and housing, community corrections, and health and social services. He is the CEO of Eden Care Communities, one of Saskatchewan’s largest charities, and his charitable governance experience has been gained by serving on many boards, including Kids Brain Health Network and Kids Brain Health Foundation. He is Vice Chair for the Jane Goodall Institute of Canada as well as a volunteer not-for-profit coach with the JDC West business school competition at the University of Regina. He is the co-producer and co-host of the podcast, “For the Love of Kindness.” Bill holds a Master’s degree in Leadership, and he was a Certified Fundraising Executive for 15 years. He has also completed the Institute of Corporate Directors Not-for-Profit Governance Essentials Program.

Carrie-Anne Whyte (she/her) is HDRN Canada’s Program Lead with the Data Access Support Hub (DASH). She is based at the Canadian Institute for Health Information (CIHI) Ottawa, where she has worked for the last decade. Carrie-Anne’s areas of focus include analysis, methodology and health data. Prior to her career at CIHI and HDRN Canada, Carrie-Anne held roles with the Public Health Agency of Canada and the Ottawa Hospital Research Institute. She holds a Master of Public Health from McGill University.

Dr. Cécile Petitgand is the President and Founder of Data Lama, a Quebec-based company specialized in data management for social acceptability. Dr. Petitgand is also a data management advisor at the CHUM Research Centre and a consultant to the Fonds de recherche du Québec. She previously held the position of coordinator of the Data Access Initiative of the Table nationale des directeurs de la recherche of the Ministère de la Santé et des Services sociaux du Québec (MSSS). Dr. Petitgand holds a PhD in Management Sciences from the University of Paris-Dauphine and the University of Sao Paulo (Brazil), and did her post-doctoral research at the Hub santé : politique, organisations et droit (H-POD) of the University of Montreal on the theme of AI implementation in healthcare. Cécile Petitgand also holds a master’s degree in economics from the Paris School of Economics, and is a graduate of the École Normale Supérieure de Paris (ENS Ulm).

Dr. Donna Curtis Maillet (she/her) is the Privacy Lead for HDRN Canada and manager of the Data Privacy Program at the NB-Institute for Research Data and Training located at the University of New Brunswick. Dr. Curtis Maillet advise and ensures privacy legislation compliance with respect to all aspects of the data life cycle collection, from collection and access to use, dissemination and disposition. She is responsible for the development and communication of data policy and procedures, documentation of data business lines, provision of privacy training and data access application reviews for privacy compliance.

Farin Shore (accepts all pronouns) is a Harm Reduction Peer with Doctors of the World, working professionally to help improve quality of life for people who use drugs. He assists them to find avenues of intervention and support as well as works to facilitate trust between the patient and the health care system. Farin lives in Montreal.

Harlan Pruden (nēhiyo/First Nations Cree Nation) works with and for the Two-Spirit community locally, nationally and internationally. Harlan is an Indigenous Knowledge Translation Lead at Chee Mamuk, an Indigenous public health program at BC Centre for Disease Control, and a PhD. student at Simon Fraser University’s Faculty of Health Sciences. Harlan’s doctoral research focuses on how (and if) Two-Spirit facilitates access to health information and well-being for Indigenous sexual and gender minority peoples and/or communities. Harlan is a co-founder of the Two-Spirit Dry Lab, North America’s first research group/lab focusing on Two-Spirit people, communities and experiences. He is the Managing Editor of the TwoSpiritJournal.com and an Advisory Member for the Canadian Institutes of Health Research’s Institute of Gender and Health. Harlan is co-founder and former Director of NorthEast Two-Spirit Society, an NYC community-based organization.

Dr. Kim McGrail (she/her) is a Professor in the UBC School of Population and Public Health and Centre for Health Services and Policy Research and Scientific Director of Population Data BC and Health Data Research Network Canada. Her research interests are quantitative policy evaluation and all aspects of population data science. Kim is Interim Editor-in-Chief of the International Journal of Population Data Science, the 2009-10 Commonwealth Fund Harkness Associate in Health Care Policy and Practice, 2016 recipient of the Cortlandt JG Mackenzie Prize for Excellence in Teaching, and 2017 recipient of a UBC award for Excellence in Clinical or Applied Research. She was part of the Expert Advisory Group for the pan-Canadian Health Data Strategy and is currently a member of the Global Partnership for AI as part of the Data Governance Working Group.

Dr. Laura Bee (she/her) is a data equity specialist at the Manitoba Centre for Health Policy and a member of HDRN Canada’s Inclusion, Diversity, Equity and Accessibility (IDEA) Team. Prior to working at MCHP, she was a stay-at-home-mom and volunteered extensively in her small rural community as well as for patient advocacy groups. Dr. Bee holds a PhD in medical microbiology from the University of Manitoba and a Master of Public Health from the University of Victoria, specializing in social policy. She spends most of her free time enjoying her kids’ activities, hiking, board games and puzzles.  

Rob Semeniuk is a former video journalist who spent 20 years in television newsrooms across western Canada exploring what makes the world, and people, tick. When he switched gears and entered corporate communications, he brought his storytelling chops and natural news sense to share compelling stories of entrepreneurial and business successes.  He grew up in rural Alberta, where farm life nurtured a strong sense of family, community and a commitment to hard work. Rob’s deep connection to and respect for Indigenous culture was instilled by his maternal grandmother, a woman whose childhood memories as a Ukrainian settler include the kind help and fellowship of the Cree people. He is married to Sharon, a registered nurse and together they have three grown children.

Dr. Teddy Consolacion is an epidemiologist at the BC Centre for Disease Control in HIV. With a PhD.in social psychology, they have worked in different public health agencies in the US and Canada for over 17 years. Their interests include research on the intersectionality of identities and downstream health outcomes.