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Youth perspective sought for Public Advisory Council

HDRN Canada is recruiting young adults to join its Public Advisory Council (PAC), a diverse group of people who advise on a range of topics related to health data and the interaction with data holders and health systems. Established in 2020, the PAC reflects the network’s commitment to including members of the public in decisions about health data.

“It’s critical that members of the public have the opportunity to learn about and discuss how our health data are collected and used, and the impacts this has on our health care,” said Frank Gavin, PAC Chair. “In particular, young people have a real interest in the future of health data in Canada, and we need their voice represented on the PAC.”

The PAC strives to maintain a council of members with a diversity of experience related to gender identity, age, occupation and cultural background — from all walks of life and geographical regions across the country. “We want to ensure the young adult perspective is represented, so for this round of recruitment, we’re inviting new members between the ages of 18 and 28 to apply for a three- year term,” said Julia Burt, Public Engagement Lead for HDRN Canada. “If you’re interested in how health data can be used for public benefit while protecting privacy and ensuring research is aligned with societal values and Indigenous data sovereignty — serving on the PAC could be an exciting role!”

HDRN Canada’s Public Advisory Council meets at least five times a year, with meetings conducted in French and English. “Most meetings are conducted virtually, but once a year we gather in person,” Burt continued. “This year, alongside our annual in-person meeting, we held our first public forum, Health Data for All of Us, for researchers and members of the public to share their thoughts and concerns about how health data in Canada should be used. We’ve already started planning for our 2024 events!” 

PAC members receive an honorarium of $750 per year for participating in meetings, responding to requests between meetings, and reviewing materials intended for the public. Other work includes facilitating connection and communication between HDRN Canada and various communities and organizations. The PAC’s Terms of Reference have more information on compensation, membership and other details.

To apply, submit an application form by July 28. For questions, contact Jannath Naveed, HDRN Canada’s Public Engagement Research Assistant: 


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