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2022 Annual CAHSPR Conference

The following sessions led by members of HDRN Canada’s Executive and Leads teams have been accepted for the 2022 Annual CAHSPR Conference, "“The Power and Promise of Canadian HSPR”. They will also be speaking on a variety of plenaries and panels on health services and policy research. 

Tuesday, May 31, 2022

Opening Plenary: The Power of Canadian HSPR

Speakers: Tara Kiran, Christine Chambers, Vincent Dumez, John Lavis, Alan Katz

Time: 10:30am to 11:45am EDT

Health services and policy research is pivotal in the design of evidence-based healthcare and health policy. Virtually CAHSPR 2022 is an opportunity to showcase the work of our community of researchers. Join our dynamic panel of Canadian leaders as we kick off the conference by exploring, recognizing and celebrating the power of Canadian HSPR.

Embedding Inclusion, Diversity, Equity and Accessibility in health data research – Data Research Centres and Approaches to IDEA

Presenters: Amy Freier, Robyn Rowe, Nicole Aitken, and Lisa Nowlan

Time: 3:00pm to 4:15pm EDT

Data, especially big data and administrative data, has become one of the critical infrastructures of the 21st century. Data and data research, however, are not neutral. Colonialism, racism, gender discrimination, ableism, and other forms of oppression have shaped the data that are available. Data can thus perpetuate inequities in appropriate medical care, lifesaving and enriching treatments, and other social services. Moreover, the same systemic issues are baked into health data research, including: 

  1. the data that is collected and stored
  2. the questions that are asked of the data
  3. iii) the people and teams that are assembled to analyze and interpret health data; and
  4. iv) the dissemination of results.

The purpose of this panel is to provide participants with knowledge about different approaches to IDEA in health data research environments – emphasizing the needs for site-specific solutions and opportunities for approaches across research centres. Presenters will cover two broad areas of concern:

  1. Operations: tools, processes, and practices to embed IDEA in the day-to-day work of data research centres (e.g.: job postings, mentoring programs, meetings, and team composition); and
  2. Data Research: tools, processes, and practices to embed IDEA in the data research cycle (e.g.: data flags and process guides, governance, analytics, and dissemination).

Wednesday, June 1, 2022

Balancing Indigenous Data Rights, Priorities, and Interests

Presenter: Dr. Robyn K. Rowe

Time: 1:00pm to 2:15pm EDT

First Nations, Inuit, and Métis tackling the healthcare system in this country face a tangled and complex mess of hundreds of years’ worth of bureaucracy and policies rooted in discrimination, racism, and assimilatory mindsets. The continued impacts of colonial inequities are amplified because of digitization, connection, ecological crises, and a global pandemic. Government polices lack alignment with movements that assert Indigenous sovereignty. The innate and traditional life principles that have guided Indigenous Peoples as stewards of this earth for millennia, are needed to ensure the continued survival of all life on the planet.

The Indigenous Data Team at HDRN Canada will discuss:

  1. what is data colonialism;
  2. what are Indigenous-led data initiatives; and
  3. 3) what are some areas that need further discussion to advance Indigenous-led data governance.

Centralizing research approaches that improve Indigenous lives through Indigenous-led and Nation-born priorities is a critical step in Nations' capacity to rebuild, rematriate, and reconnect. Despite vast diversity between and among Indigenous Nations in Canada and around the world, there is general agreement that Indigenous knowledges must be used to guide the development, application, and improvement of research through Indigenous-led governance and sovereignty initiatives. This presentation aims to provoke discussions on thoughtful steps forward, together. 

Towards a Pan-Canadian Health Data Strategy

Presenters: Eric Sutherland, Dr. Steven Hoffman, Dr. Kim McGrail, Dr. Michael Wolfson, Dr. Ewan Affleck

Time: 1:00pm to 2:15pm EDT

Advancing multi-regional research in Canada through collaboration

Presenters: Dr. Laurie Lambert, Dr. John McLaughlin, Dr. Michael Schull, Nicole Yada

Time: 3:00pm to 4:15pm EDT

COVID-19 has accentuated the importance of data for understanding social determinants of health, informing clinical care, and facilitating decisions and policy making across Canada. Partnerships to broaden and expand data availability and improve Canada’s health data landscape are needed. The Canada Health Data Research Alliance (HDR Alliance), led by Health Data Research Network Canada (HDRN Canada), is aligning partners to facilitate and accelerate multi-regional data linkage and access. The HDR Alliance is designed to expand sources and types of data available in a coordinated way; enabling research that supports health policy and improves health and health equity.

The panel will describe:

  1. HDRN Canada’s progress in convening key stakeholders across the data continuum;
  2. how a network of clinical trialists is embedding administrative data into a national COVID-19 RCT;
  3. 3) progress on a collaboration between HDRN Canada and CanPath, Canada’s largest population cohort, that is enabling a multi-province COVID-19 study; and
  4. 4) the potential for real-world data to be used for health technology assessments during the drug life cycle, including during the pandemic.

Measuring COPD incidence in NB: analysis of a province-wide linked administrative and clinical database

Presenter: Ted McDonald

Time: 3:00pm to 4:15pm EDT

Chronic obstructive pulmonary disease (COPD) in New Brunswick (NB) is the 3rd leading cause of both death and hospitalization but estimates of the prevalence of COPD among New Brunswickers aged 35 and older have ranged from 24,800 (based on self reported data from CCHS in 2016) to 57,000 (based on CCDSS reporting in 2018). This paper analyzes linked administrative-clinical data to study the extent to which physician diagnosis of COPD in NB is consistent with clinical diagnostic criteria.

Thursday, June 2, 2022

Closing Plenary: The Promise of Canadian HSPR

Speakers: Annie Leblanc, Alika Lafontaine, Andrew Boozary, Kim McGrail, Jennifer Zelmer

1:00pm to 2:00pm EDT

Join this panel of thought leaders for what promises to be an inspiring conversation about the promise of health services and policy research.

Electronic Poster

Requirements or Status Quo? A case study of current administrative data access privacy safeguards for multi-province research.

Presenters: Donna Curtis Maillet, Marie-Chantal Ethier, Maria Kim-Bautista, Juliana Wu, Nicole Yada

Building on HDRN Canada Privacy Team’s exhaustive review of Canadian provincial and territorial privacy legislation, in partnership with a large clinical trial research network, we are mapping in real time the data access request processes for a seven-province research study. The study seeks to link at the individual level one variable from administrative data to clinical trial data for centralized analysis. This work will provide an evidence-based review of processes and policies affecting access to administrative data for pan-Canadian research.  A systematic study of privacy safeguards will provide significant and necessary leverage to lobby for change in legislation and policy and allow for harmonized data access for multi-regional research. 

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