Disclosure of personal health information (PHI) and de-identified data are subject to specific provincial or territorial legislation and requirements. In many Canadian regions, there may be legislative or policy limitations to the disclosure of patient level data, and to the transfer and/or sharing of data across regional boundaries for research use. This can have implications for research where the study is designed for data to be hosted / centralized in one location for analysis.
How can DASH help?
As these requirements are set out in each HDRN Canada Member Organization’s agreements, DASH can support researchers in navigating these challenges and identify potential options early in the throughout the research design process. DASH can also provide researchers with feedback as data sharing and/or access agreements are being drafted.