COVID-19 Resources

The organizations that make up Health Data Research Network Canada (HDRN Canada) hold and manage population-wide health and health-related data infrastructure that is used by hundreds of expert analysts and researchers across Canada.

HDRN Canada is gathering information about the availability of COVID-19-related data resources to support researchers who are interested in conducting multi-jurisdictional research. Access to these resources will accelerate and improve the quality of COVID-19 analytics, predictive models and research studies that include multiple provinces and territories.

Latest Updates as of September 9, 2020

COVID-19 lab testing data are currently available for research purposes in five Canadian provinces: BC, AB, MB, ON, NL. Information about COVID-19 lab testing data is now available on our resource page, including:

  • The availability of selected variables/fields in the COVID-19 lab testing data in these provinces.
  • An overview of the data, including frequency of data updates, and the dates of testing currently captured in the data.
  • Information about COVID-19 lab testing data in Newfoundland and Labrador is now available below
  • Information about COVID-19 lab testing data in Manitoba has been updated

New Links and Resources

  • HDRN Canada is partnering with Canadian Partnership for Tomorrow’s Health (CanPath) to support research teams interested in leveraging linked data, including COVID-19 related data from CanPath’s COVID-19 Questionnaire and provincial data centres where available. Learn more.
  • On August 24 2020, CIHI released NACRS Emergency Department Visits: Comparison of January to March 2019 and January to March 2020 on its website. This report highlights a sharp drop in visits to Emergency Departments across all participating provinces and territories and across all age groups, starting in the second week of March 2020, compared to the same period in the previous year.

Previous Briefing Notes

Data Holdings

Some HDRN Canada organizations have linkable COVID-19 test results data:

  • Five (5) provinces (BC, AB, MB, ON, NL) have COVID-19 test result data integrated into their data platforms.
  • Multiple other HDRN Canada organizations are in discussions about obtaining COVID-19 test result data
  • Information about COVID-19 lab testing data is now available below. 
HDRN Canada has prepared the following two tables to provide information about COVID-19 lab testing data from these provinces to support multi-jurisdictional COVID-19 research.

The information in these tables will continue to be updated as COVID-19 lab testing data becomes available in additional provinces and in the territories.

Table 1:
  • Provides an overview of the data, including frequency of data updates, and the dates of testing currently captured in the data.
  • Clicking the jurisdiction name tab at the top of the table will display the lab testing dataset information for that jurisdiction.
 
Table 2:
  • Provides the availability of selected variables/fields in the COVID-19 lab testing data in each province.
  • The variables/fields have been categorized as either Demographic, Lab, or Other, which can be viewed separately by clicking on their tab at the top of the table.
  • The HDRN Canada Variable/Field Names within the table are general terms chosen to represent the variables/fields. A definition and example of those variables/fields is provided followed by the availability of those variables/fields in each jurisdiction (Yes or No).
  • The variables/fields were selected because of their value for constructing a minimum dataset consistent with the Clinical Data Interchange Standards Consortium (CDISC). CDISC standards provide a set of guidelines on how to structure data.
  • Additional variables/fields are available for each province, and will be available to researchers as they consult with data access staff about their projects.
 

 

COVID-19 Data Access

HDRN Canada is well placed to facilitate access to COVID-19 related data through its Data Access Support Hub (DASH)

  • To date, DASH has supported five (5) COVID-19 related projects and research funding proposals by providing researchers with cost estimates and feasibility assessments.
  • DASH has been facilitating multi-jurisdictional COVID-19 related research in a wide range of domains including emergency medicine, surgery, pediatric diabetes, neonatal care and virtual care.

To learn more and to request access to multi-jurisdictional data, please visit HDRN Canada's Data Access Support Hub (DASH).

Collaborations

  • HDRN Canada is working with a number of partners to identify COVID-19 data gaps and needs in order to further support multi-jurisdictional research.
  • HDRN Canada is engaging with the Canadian Institutes of Health Research (CIHR), national cohort studies, and networks such as the Canadian Primary Care Sentinel Surveillance Network (CPCSSN) to accelerate Canada’s response to COVID-19. In particular, identifying opportunities to facilitate more timely and complete access to health administrative data; data standardization, integration and linkage across jurisdictions; and filling data and information gaps.
  • As of July 2020, HDRN Canada is a key partner in the newly launched International COVID-19 Data Research Alliance and Workbench, a coordinated international platform to support the rapid development of insights and treatments to combat the global effects of COVID-19.
  • As of September 2020, HDRN Canada is partnering with Canadian Partnership for Tomorrow’s Health (CanPath) to support research teams interested in leveraging linked data, including COVID-19 related data from CanPath’s COVID-19 Questionnaire and provincial data centres where available. Learn more.

HDRN Canada Organization Resources

Please click on the name of organization to find a list of available COVID-19 links and resources available from our partners.

Other Resources

WHO Case report form - this indicates what information is being collected and shared, and could inform a baseline of a cross-provincial minimum data set for cases. 

International Roundtable on AI and COVID-19, CIFAR

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