To learn more about HDRN Canada, please explore the following resources.
Overview Resources
Backgrounder (1 page)
About HDRN Canada (Slide deck)
- English
- French (Coming soon)
Proposal Summary (July 2018)
Webinars
Watch recording: HDRN Canada - Informational Webinar
Watch recording: RRDS Canada - Webinaire d'information
Watch recording: Informational Webinar on the Data Access Support Hub (DASH)
Articles
Plain language about health data is essential for transparency and trust, The Conversation (October 9, 2019)
The public needs to know why health data are used without consent, The Conversation (October 6, 2019)
Health data collected during the coronavirus pandemic needs to be managed responsibly, The Conversation (September 10, 2020)
White Papers
Population Health Digital Research Infrastructure: Building Up and Out from a Learning Collaborative Network: A White Paper submitted by Health Data Research Network Canada (HDRN Canada) to the New Digital Research Infrastructure Organization (NDRIO) (December 9, 2020)
Publications
Guttman, Astrid. The SPOR Canadian Data Platform: opportunity for multi-provincial research. CMAJ October 07, 2019 191 (40) E1091-E1092; DOI: https://doi.org/10.1503/cmaj.191040
Dahl, L. T., Walker, J. D., Schull, M., Paprica, P. A., McDonald, J. T., Gavin, F., Ethier, J.-F., Diverty, B., McGrail, K., Katz, A. and Wu, J. (2020) “The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research”, International Journal of Population Data Science, 5(1). DOI: https://doi.org/10.23889/ijpds.v5i1.1374
Paprica, P. A., McGrail, K. M., & Schull, M. J. (2019). Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data. International journal of Population Data Science, 4(1), 1106. https://doi.org/10.23889/ijpds.v4i1.1106
Paprica, P. A., Sydes, M. R., McGrail, K. M., Morris, A. D., Schull, M. J., & Walker, R. (2020). Prospective data linkage to facilitate COVID-19 trials - A call to action. International Journal of Population Data Science, 5(2), 1383. https://doi.org/10.23889/ijpds.v5i2.1383
Paprica, P. A., Sutherland, E., Smith, A., Brudno, M., Cartagena, R. G., Crichlow, M., Courtney, B., Loken, C., McGrail, K. M., Ryan, A., Schull, M. J., Thorogood, A., Virtanen, C. and Yang, K. (2020) “Essential Requirements for Establishing and Operating Data Trusts: Practical Guidance Based on A Working Meeting of Fifteen Canadian Organizations and Initiatives”, International Journal of Population Data Science, 5(1). DOI: https://doi.org/10.23889/ijpds.v5i1.1353