Resources

To learn more about HDRN Canada, please explore the following resources.

Overview Resources

PDF icon Backgrounder (1 page)

PDF icon About HDRN Canada (Slide deck)

PDF icon Proposal Summary (July 2018)

Webinars

Watch recording: HDRN Canada - Informational Webinar

PDF icon Slide deck

Watch recording: RRDS Canada - Webinaire d'information

PDF icon Slide deck

Watch recording: Informational Webinar on the Data Access Support Hub (DASH)

PDF icon English slide deck

PDF icon French slide deck

Articles

Plain language about health data is essential for transparency and trust, The Conversation (October 9, 2019)

The public needs to know why health data are used without consent, The Conversation (October 6, 2019)

Health data collected during the coronavirus pandemic needs to be managed responsibly, The Conversation (September 10, 2020)

Publications

Guttman, Astrid. The SPOR Canadian Data Platform: opportunity for multi-provincial research. CMAJ October 07, 2019 191 (40) E1091-E1092; DOI: https://doi.org/10.1503/cmaj.191040

Dahl, L. T., Walker, J. D., Schull, M., Paprica, P. A., McDonald, J. T., Gavin, F., Ethier, J.-F., Diverty, B., McGrail, K., Katz, A. and Wu, J. (2020) “The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research”, International Journal of Population Data Science, 5(1). DOI: https://doi.org/10.23889/ijpds.v5i1.1374

Paprica, P. A., McGrail, K. M., & Schull, M. J. (2019). Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data. International journal of Population Data Science, 4(1), 1106. https://doi.org/10.23889/ijpds.v4i1.1106 

Paprica, P. A., Sydes, M. R., McGrail, K. M., Morris, A. D., Schull, M. J., & Walker, R. (2020). Prospective data linkage to facilitate COVID-19 trials - A call to action. International Journal of Population Data Science, 5(2), 1383. https://doi.org/10.23889/ijpds.v5i2.1383

Paprica, P. A., Sutherland, E., Smith, A., Brudno, M., Cartagena, R. G., Crichlow, M., Courtney, B., Loken, C., McGrail, K. M., Ryan, A., Schull, M. J., Thorogood, A., Virtanen, C. and Yang, K. (2020) “Essential Requirements for Establishing and Operating Data Trusts: Practical Guidance Based on A Working Meeting of Fifteen Canadian Organizations and Initiatives”, International Journal of Population Data Science, 5(1). DOI: https://doi.org/10.23889/ijpds.v5i1.1353